What is Concept Mapping?
Concept mapping is a process used to brainstorm and sort ideas related to a specific topic. It usually takes place over three sessions:
Session 1: Brainstorming Ideas
A fill-in-the-blank statement is provided to a group of participants. Participants then work together to think of as many ideas as possible to complete the statement.
Session 2: Sort Ideas
Participants work individually to sort all the ideas from Session 1 into piles based on how strongly he/she thinks the ideas are related to each other. Software is then used to create an illustration of how closely related the ideas are, based on how often each idea was sorted together or apart. The software then groups the ideas close together on the map into "clusters", each representing a separate concept (or theme).
Session 3: Refine Group Map
The “Concept Map” is presented to the group for review. Participants work together to refine the map and name each concept within the map.
What is Patient-Centered Research?
A shift has taken place in medical research to be more inclusive of patient priorities for health and health care. The Patient-Centered Outcomes Research Institute (PCORI) is an independent, nonprofit organization authorized by Congress in 2010. Its mission is to fund research that will provide patients, their caregivers, and clinicians with the evidence-based information needed to make better-informed healthcare decisions. PCORI is committed to continually seeking input from a broad range of stakeholders to guide its work.
This study is patient-centered in process as well as outcomes. Our patient-partner advisory board identified the need for this project, and patients have been involved in every project step. Patient-participants will also be actively involved in interviews, concept mapping and analysis, and in sharing our results.
How Can You Get Involved?
Want to join the PAKSAB? Interested in research collaborations?
To learn more, please contact the Project Coordinator, Alexzandra Gentsch.