Philadelphia University + Thomas Jefferson University

Hollin, Ilene

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Ilene L. Hollin, PhD, MPH

Ilene L. Hollin, PhD, MPH

Contact Dr. Hollin

901 Walnut Street
10th Floor
Philadelphia, PA 19107

(215) 503-0174
(215) 923-7584 fax


PhD, Johns Hopkins University
MPH, Columbia University
BA, Brandeis University

University Appointments

Lecturer, Jefferson College of Population Health

Research & Practice Interests

Health Policy
Health Economics
Patient Preferences
Rare Diseases
Orphan Drugs


Health Economics


Dr. Ilene L. Hollin is the National Pharmaceutical Council (NPC) and University of Southern California Schaeffer Center’s Postdoctoral Health Policy Fellow. Dr. Hollin’s research interests include the economics of rare diseases, patient-centered health care, decision-making and innovative healthcare payment and delivery models for special populations. She joined NPC in 2016.

Dr. Hollin has nearly ten years of experience in healthcare research. Most recently, she has focused on using stated-preference methods to quantify stakeholder preferences. She completed a dissertation on patient and caregiver preferences for emerging therapies for Duchenne muscular dystrophy to assess patient-centered benefit-risk for regulatory decision-making. During her doctoral studies, Dr. Hollin also worked with the Roger C. Lipitz Center for Integrated Health Care, the Johns Hopkins Center to Eliminate Cardiovascular Health Disparities Health and as a program specialist for the Office of the National Coordinator for Health Information Technology. Prior to her doctoral studies, she worked as a research manager for the Healthcare Innovation and Technology Lab, where she conducted health information technology research. Early in her health research career, Dr. Hollin conducted clinical research at the New York State Psychiatric Institute and the Morgan Stanley Children’s Hospital of New York.

Dr. Hollin holds a PhD in Health Economics and Policy from the Johns Hopkins University Bloomberg School of Public and a MPH in effectiveness and outcomes research from Columbia University Mailman School of Public Health. She earned her BA in American Studies, and International and Global Studies from Brandeis University.


Most Recent Peer-Reviewed Publications

  1. Engaging patients and caregivers in prioritizing symptoms impacting quality of life for Duchenne and Becker muscular dystrophy
  2. Care Management to Reduce Disparities and Control Hypertension in Primary Care
  3. Seeing is Engaging: Vlogs as a Tool for Patient Engagement
  4. Patient-centered benefit–risk assessment in duchenne muscular dystrophy
  5. Using Best–Worst Scaling to Investigate Preferences in Health Care
  6. Developing a Patient-Centered Benefit-Risk Survey: A Community-Engaged Process
  7. A Scoping Review of Healthcare Costs for Patients with Cystic Fibrosis
  8. Prioritizing Parental Worry Associated with Duchenne Muscular Dystrophy Using Best-Worst Scaling
  9. Serving Older Adults with Complex Care Needs: A New Benefit Option for Medicare
  10. A community-engaged approach to quantifying caregiver preferences for the benefits and risks of emerging therapies for duchenne muscular dystrophy
  11. Caregiver Preferences for Emerging Duchenne Muscular Dystrophy Treatments: A Comparison of Best-Worst Scaling and Conjoint Analysis
  12. How will we know if it's working? A multi-faceted approach to measuring usability of a specialty-specific electronic medical record
  13. Innovation spaces: Six strategies to inform health care
  14. Screening parents during child evaluations: Exploring parent and child psychopathology in the same clinic
  15. A review of the use of mobile phone text messaging in clinical and healthy behaviour interventions
  16. Barriers to cross--institutional health information exchange: a literature review.