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Medical Education & Training Research

Physician Area Shortage Program
Support Department of Family & Community Medicine
SKMC Alumni

Primary Care for Adolescents & Beyond with Complex Childhood-Onset Conditions

Mission

Optimizing the care and defining best practices for the care of teens, adults, and older adults with complex childhood-onset conditions from transition to lifespan care. As part of this goal, we need to expand the disability competency of the interprofessional, collaborative workforce to further a person-centered culture in healthcare.

Community Partners

  • Special Olympics of Pennsylvania
  • The ARC of Philadelphia
  • Carousel Connections
  • Down Syndrome Association of Delaware

Themes

Third-year clerkships, fourth year electives, disability, curriculum development, community collaboration & education on IDD (Intellectual and Developmental Disabilities), participation with local, regional, and national IDD organizations, interprofessional workforce development.

Project List

Jefferson FAB Center for Complex Care - a primary care medical home for adolescents and adults with complex childhood-onset conditions. FAB services as the home base for clinical activities for Mary Stephens and Karin Roseman.

  • PADDC Grant - The Pennsylvania Developmental Disabilities Council has granted the FAB Center with a three year Quality Healthcare Access Grant to create a community advisory board of people with lived experience with IDD to help co-design and provide education to family medicine residents throughout the enterprise on working with people with IDD. In year three of this project, we are launching a website with educational modules on the care of people with IDD which is free and can be accessed by professionals and community members.
  • HRSA Grant - The Health Resources and Services Administration has granted the FAB Center with a five year grant for their project: JET PHILA: Jefferson Education and Training in Primary Healthcare in IDD and Language Access. The Jefferson Education and Training: Primary Healthcare in IDD and Language Access (JET: PHILA) program will enhance medical student and resident training at Jefferson. Through elective courses, clinical experiences, and service-learning opportunities, trainees have the opportunity to learn from experienced faculty and clinicians as well as patients with lived experience with both IDDs and LEP.  Medical students and residents will gain clinical, cultural, and linguistic competencies to provide quality care to patients with IDDs or LEP.
  • Thomas Jefferson University Helath Women’s Board - The Women’s Board has provided two grants to the FAB Center for their projects;
    • Providing period panties and education to people with IDD who menstruate
    • Providing 3, 2, 1 Go! Kits to patients to increase physical activity and healthy nutrition

Jefferson Center for Autism and Neurodiversity - Alex Fossi, Jane Tobias, Wendy Ross, Sabra Townsend. 

  •   Vizient data analysis - NEJM Catalyst (led by Jon Gleason)
  • Standardized patients with autism in collaboration with SON
  • Ongoing evaluation of new approaches to healthcare and the medical-home model for care of neurodiverse individuals
  • Advocacy and policy
  • Patient and family experience

National Curriculum Initiative in Developmental Medicine (NCIDM)

  • Grant ends June 2021 - ongoing analysis of data and continued curriculum development
  • Study Team: Mary Stephens, Nethra Ankam, Allison Casola
  • Special Olympics Selective (MS1-4 and interprofessional involvement) and third year clerkship focus on IDD and physical disabilities through PDAT (Patients with Disabilities as Teachers) and the NCIDM toolkit

OT/ID & Dementia – Jefferson Elder Care

E. Adel Herge, OTD, OTR/L, FAOTA

Undergraduate Medical Education Director for Rehabilitation Medicine, Wellness Thread Director for JeffMD, Co-Faculty Lead of the Jefferson Health Mentors Program, Disability Education Innovation Initiative Committee Chair - Nethra Ankam

Evaluation of JeffMD curriculum from the standpoint of the Core Competencies on Disability for Health Care Educationto determine gaps in medical student education.

  • Use of Critical Disability Theory to look at the presence or absence of ableism in the JeffMD curriculum
  • Curriculum development to mitigate any ableism or gaps found.
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